The Genetic Counsellor will be very familiar with the grieving process as there are many different forms of loss around genetic issues” (Evans 2006: 38). Critically evaluate the usefulness of theories of grief and loss to a Genetic Counsellor’s work with clients. Essays should demonstrate a working understanding of theory and the ability to integrate theory and practice. This should be achieved by reflecting on personal experience and/or personal understanding of the issues involved as well as drawing critically on a range of relevant theory.
The main goal of the constructivist meaning‐making framework is to encourage grief adaptation through the search for meaning in loss. Strategies to help patients construct meaning from their experiences may lead to positive adaptation. This strategy has been used in contemporary grief counseling, but it may also be beneficial in the genetic counseling scenario. The diagnosis of a rare genetic disorder often has considerable psychosocial impact as patients and families describe feelings of isolation and hopelessness. Negative experiences with healthcare providers often reinforce these feelings. Genetic counselors continue to provide education and psychosocial support to patients and families with rare genetic disorders, and meaning‐making strategies may provide a framework for which to help patients and families adapt to these challenging diagnoses. In this paper I explore the background of meaning‐making counseling strategy and describe an experience in which it was used for counseling a family with a child with Mowat‐Wilson syndrome. I show how a meaning‐making framework can help families explore and construct meaning from their experiences and encourage positive adaptation. I also address the possible limitations of this strategy and the need to share additional experiences with this counseling framework